The American Sickle Cell Anemia Association (ASCAA) is an organization that provides quality and comprehensive services through diagnostic testing, evaluation, counseling and supportive services to individuals and families at risk for Sickle Cell Disease.
The American Sickle Cell Association is a private nonprofit 501(C)3 organization in Cleveland, Ohio. The ASCAA was founded in 1971, and is the oldest sickle cell research, education, and social services organization in the United States.
Within the Ohio Department of Health, the ASCAA is designated as Region V and comprises Cuyahoga, Geauga, Lake, Medina and Lorain counties. Region V has the highest incidence of sickle cell disease and variants of the disease in the state.
The organization currently provides a wide range of services to those individuals and families with either sickle cell trait or variants of the disease itself. Key services include: ongoing follow-up diagnostic testing, counseling, and tracking services for parents with infants who screen positive by the State Laboratory; Family Counseling and Support Services; coordination of medical, social services, education and support for the program's clientele; teacher education and screening services delivery at upwards of 85 local health fairs. In addition, ASCAA makes outreach to the region's African American, Hispanic, Mediterranean, and Arab communities for family education and the identification of the incidence of sickle cell disease.
Since its inception, the organization has tested approximately 125,000 at risk individuals and has been a repository of statistical, case information, and data beneficial to patients, affected family members and the medical establishment both locally and globally. ASCAA has the interest of children and youth at the center of all of its affairs. Aside from its diagnostic testing, school educator supports and summer camp, the agency operates an individualized transitioning program to adolescents called CHAMPPS.
The American Sickle Cell Anemia Association (ASCAA) staff currently provides a wide range of services to those individuals and families with either sickle cell trait or variants of the disease itself. Particular services include ongoing follow-up diagnostic testing, counseling and tracking services for parents and infants who have screened positive by the State of Ohio Laboratory newborn screening practices.
ASCAA affairs are governed by a twenty-member Board of Trustees. Administrative leadership is provided by the Executive Director. Day-to-day operations are facilitated by a seven-member staff comprised of social workers, educator counselor, bilingual health educator, administrative assistant, IT consultant, accountant and clerical staff.
Our team consists of the following people:
Ira Bragg-Grant
Executive Director
Leslie Carter
Newborn Screening Coordinator
Rebekah Fink
Outreach Health Education Coordinator
Robert King
Messenger /Courier
Tim Marek
IT/MIS
Charlotte Martin
Receptionist
Larry Osayamwen, CPA
Accounting
Gilberto Peña
Bilingual Health Educator
OFFICERS |
ACTIVE COMMITTEE |
Pamela Bradford -Board Chairman |
Fundraising, Program, Board Development |
Dr. Anthony Stallion - Vice Chairman |
Medical Advisory, Board Development |
Dr. Mark Worford - Treasurer |
Finance, Fundraising |
Ed Scott - Vice Treasurer |
Personnel, Fundraising |
Judy Montfort - Secretary |
Fundraising, Program, Board Development |
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BOARD |
ACTIVE COMMITTEE |
Yolanda Taylor |
Fundraising, Program |
Dr. Duncan Shepherd |
Program, Fundraising |
Naomi Marshall |
Fundraising |
Debra Mardenborough-White |
Fundraising |
Gary Williams, Attorney |
Personnel |
Dr. Willard Harper, Ph. D. |
Medical Advisory |
Leah Williams, Attorney |
Fundraising |
Jessica Cartagena |
Fundraising |